LAM Foundation
Mission:
Lymphangioleiomyomatosis, better known as LAM, is a progressive lung disease that affects women almost exclusively, usually during their childbearing years. LAM often goes misdiagnosed as asthma, emphysema, or chronic bronchitis. Scientists estimate that there could be as many as 250,000 LAM patients worldwide.The Foundation began in 1995 as a grass roots effort and has evolved into an organization that is described by the National Heart, Lung, and Blood Institute (NHLBI) as "a model for voluntary health agencies." Headquartered in Cincinnati, Ohio, the Foundation is the only LAM organization which embodies all of the elements required to move LAM research from the laboratory to the clinic. The Foundation embraces women with LAM and their families, provides support and education, engages scientists and doctors, and raises funds for the study of LAM. With research as its central mission, the Foundation has elevated LAM from the ranks of rare and forgotten diseases to the forefront of pulmonary medicine. The LAM Foundation funded the first LAM research that resulted in the fundamental understanding of the genetic cause of LAM and the dawn of previously unthinkable hope: the first-ever LAM treatment trial!
Results:
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breathin-easy
06/29/10
It is truly remarkable how the human body can continue to keep on going with significantly reduced organ function. With lungs forever damaged from a rare, progressive disease, it is a matter of time when lifestyle must change to accommodate the daily struggle to breathe. Having knowledge that an ...
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slug
06/28/10
The LAM Foundation has guided many of us and our families through extremely difficult times. I don't know how I would have coped with this disease had the Foundation not been established. The staff are fantastic and the doctors who research the disease have given me and other women with LAM so ...
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barb7
06/25/10
The LAM Foundation is different from any thing I have ever been involved with. Being a LAM patient was not something I would have ever chosen for myself. Having LAM has been difficult to say the least. I found out about the Foundation after 2 lung collapses and surgery to repair my lung. The ...
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