Interstitial Cystitis Association
Mission:
Founded in 1984, the ICA promotes and funds research; educates the medical community and public; advocates for IC patients, healthcare providers, and researchers; and offers support for IC patients and their families.
Results:
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gracie
04/09/12
I've been asked to write a follow up review of the ICA and, sadly, must report that in 2011 the organization has let go most of their staff due to the loss of their federal funding. They are now using a non-profit management organization to manage the day to day operations. They seem to be "in limbo...
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gracie
04/08/11
As much as I like this organization, it is woefully lacking in transparency. I would like to see public board meetings, public annual meetings for the membership and, in general, an opportunity for members to participate in the organization and the selection of research studies to be funded. I am ...
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