Breath of Hope Inc.
TOP-RATED 2010
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Target demographics: Families, anyone who may have a family in the future, grandparents, aunts, uncles - anyone who could have a relative with CDH.
Direct beneficiaries per year: Thousands have benefited from the programs and initiatives of Breath of Hope.
Someone who had 3 hours of volunteer time could: Edit our newsletter, create graphics, help families who have been affected by CDH, distribute our materials to hospitals or health care who may distribute it to families who could benefit. Help review or edit our materials.
Geographic areas served: United States
Mission:
Breath of Hope exists to combat the congenital diaphragmatic hernia birth defect. We are committed to supporting parents, children, family members and friends facing the diagnosis of a congenital diaphragmatic hernia birth defect. We carry out this mission through promoting public awareness, supporting the medical community and encouraging research efforts to one day successfully treat all those diagnosed with a congenital diaphragmatic hernia.
Results:
Since 2008, we have either directly donated, help direct or encouraged, supported or assisted others to donate over $150,000 to Medical Research to benefit congenital diaphragmatic hernia research. Since 2008, we have had 34 States issue Proclamations or Resolutions and the US Senate to issue a Resolution for March 31st to be Congenital Diaphragmatic Hernia Awareness Day. We have distributed our medically reviewed materials, our expectant parent packages to hundreds of families and hospitals throughout the US and outside the US.
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kim891
05/07/12
I am a CDH parent who dared to question Elizabeth years ago and was kicked out of Breath of Hope. She is the most dishonest, immature, unprofessional narcissist I have ever had the misfortune to encounter. She was fired from the Red Cross for mismanagement of funds and now she is doing the same ...
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Heidi20
05/03/12
BOH was the ONLY active CDH organization when my daughter was diagnosed with CDH in 2006. The support I received was amazing! The network of other CDH parents that BOH provided became my lifeline as my daughter fought for her life. I had other CDH parents visit me while we spent several months in ...
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sydneycdh
05/03/12
I never heard of CDH before my daughter was diagnosed at 19 weeks gestation. That night I searched for information and answers on the internet, when I found BOH. This organization gave me information on what to expect and what to ask the doctors, but more important, they gave me hope! There were ...
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