1p36 Deletion Support & Awareness
Mission:
To help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives.
Results:
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effin
12/16/11
My 3 year old daughter has 1p36 deletion syndrome. This syndrome has many devastating effects for your child including mental retardation, inability to walk or talk, hearing loss, heart problems, and seizures. The technology to identify the syndrome has really only been around in the past 10 years...
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Eileen J.
11/27/11
I am a member of a very special group named 1P36 Deletion Support and Awareness because my daughter has the deletion. She was not diagnosed until 8 years of age. I'm hoping that increased awareness will get children diagnosed sooner and more accurately. Although my child is considered mildly ...
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