GIRL POWER 2 CURE INC
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November 29, 2011
my daughter has Rett Syndrome and the Girl Power 2 Cure is working hard everyday and in every way to inform people about this aweful disease. They are a wonderful support system for Rett Families.
This 'thing' that has taken our daughters from us can only be repaired; cured, through research. Funding is needed for research to find that cure. My family puts on a fundraiser every year to help raise funds for this important research. Knowledge is Power!!! Power Can Cure!!
The Great!
I've personally experienced the results of this organization in...
The support I recieve from other Rett Families.
Ways to make it better...
If I had to make changes to this organization, I would...
Make a commercial!!! so ALL the world would know what Rett is and what we live with everyday.
November 29, 2011
Originally our daughter's Auntie bought a beautiful rett girl flower sun catcher after she was diagnosed last year. We then began to connect with families on facebook and met a mom/team member there. We then began to plan for a better future than what we have been offered for our daughter, and we sent in a small donation and we immediately recieved an email and call from the exec director. The family support is phenomenal and the educational opportunities are endless with the web support. We are blessed to have a team like this on our side. After launching Keira's page we were able to raise $600+ for research and support and it was totally free for us! Thank you GirlPower 2 Cure!
The Great!
I've personally experienced the results of this organization in...
The personal time they have spent with me and the free services to send Keira's story to our network.
Ways to make it better...
If I had to make changes to this organization, I would...
Expand the teams to cover more states.
November 28, 2011
We have been involved with Girl Power 2 Cure for 3 years! They have given us so much support and information about rett syndrome. Because of Girlower 2 Cure, our family has been able to advocate for Brynn better and raise much awareness! I have never felt love and support from any other non profit and they deserve well beyond 5 stars!
The Great!
I've personally experienced the results of this organization in...
everything we do on a daily basis!
Ways to make it better...
If I had to make changes to this organization, I would...
meet more people!!
November 28, 2011
I contacted Girl Power 2 Cure the day we received Caroline's diagnosis. They immediately reached out to us with assistance and information, and connected us to other families in our area. Since then, we've received daily support, encouragement, and benefited from the incredible knowledge base of the GP2C staff and community. We are deeply grateful.
Marta Conner
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2011
March 15, 2011
Our daughter Anna was diagnosed with Rett Syndrome in February 2010. We were devastated and needed family support and a positive attitude about living with Rett. Girl Power 2 Cure not only connected us with other families but it also gave us practical ideas on everything from alternative communication devices to fundraising for a cure, and just about everything else you can imagine. We love our GP2C family!
Photos
The Great!
I've personally experienced the results of this organization in...
raising awareness and support for the cause
Ways to make it better...
If I had to make changes to this organization, I would...
i can't think of any
March 9, 2011
I found Girlpower2cure on facebook. I looked at their page and was sure I had found a way to raise awareness and money for research that would be easy and fun to do. I dont have much free time so this was exactly what I knew I could commit to. Kelly had Vicoria's web-page up and running in less than 24 hours I was pleasantly surprised.With-in days I had my flowers for her garden, and personalized fliers. Yesterday I recieved my beautiful purple cards. In less than a week I had all the tools needed to get started. I have a meeting at Victoria's school today to get this garden planted. I know I will use Girlpower2cure for all future fundraising projects,Kelly made it simple and she was available to help me get started. Thank-you ladies for giving moms like me a way to help raise awareness for Rett Syndrome it blesses many.
The Great!
I've personally experienced the results of this organization in...
getting me started on raising awareness an funds for research
Ways to make it better...
If I had to make changes to this organization, I would...
I dont know what that would be they have all their bases covered.
March 8, 2011
I came upon Girl Power 2 cure shortly after my daughter was diagnosed with Rett Syndrome. My local hospital had very little information for my husband and I. This web site had provided a life line for us! Not only have I connected with the wonderful folks like Kelly who work for GP2Cure but other families as well. They have helped me to create tools such as a web page and business "like" cards that allow me to introduce others to my daughter Lily while explaining Rett and spreading awareness! They have wonderful marketing ideas and fundraising tools which has been such an amazing resource in such a little amount of time. Again, when I think of GP2Cure, I think "my lifeline!" They are fabulous and I don't know what I'd do without them!
The Great!
I've personally experienced the results of this organization in...
see above
Ways to make it better...
If I had to make changes to this organization, I would...
I cannot think of one unless they are hiring a passionate, motivated mom of a rett girl who wants to find a cure!
March 8, 2011
We became part of the Girl Power 2 Cure family after attending one of the fundraising events they have created. There are so many things that Girl Power 2 Cure is doing for families, to raise awareness, and to support families in fundraising. Notice I am saying "family" alot? Well, that is because Girl Power 2 Cure is like a family for this family of a beautiful girl with Rett. Through them, this Mom feels empowered, and the little sister of this family does too! We can make a difference in our Rett Girl's life and Girl Power 2 Cure is helping us do that with information, support, and advice. Thank you Girl Power 2 Cure!
The Great!
I've personally experienced the results of this organization in...
fundraising and raising awareness. My daughter's fellow Girl Scouts built a Girl Power 2 Cure parade float to raise awareness. We have held a Rockin' for Rett event. The flower is fun and just inspires us. It catches peoples attention! Girl Power 2 Cure makes fundraising and raising awareness easy for families!
Ways to make it better...
If I had to make changes to this organization, I would...
change nothing!
March 8, 2011
We found Girl Power 2 Cure when our daughter was diagnosed with Rett Syndrome. This non profit is an amazing organization that reaches out to families and the general public to spread awareness and raise funds to fund a cure and treatments for rett syndrome. Their dedication and commitment to this cause surpases many with not only their care and kindness but their expertise that many other organizations lack. I am blessed to have found this organization.
The Great!
I've personally experienced the results of this organization in...
my everyday life!
Ways to make it better...
If I had to make changes to this organization, I would...
not make any - they are amazing just the way they are!
March 8, 2011
I became involved with Girl Power 2 Cure after our daughter was diagnosed with Rett Syndrome. We wanted to be part of the Rett Community and learn what we could do to help. We have found exactly that in GP2C! We feel like part of the "Rett Family" as they have opened their arms to us and have given us the resources to help our baby girl and so many other families through fund raising (Dress Up 2 Cure) and links (rettgirl.org) to helpful information and so much more. Thanks so much for ALL you do!
The Great!
I've personally experienced the results of this organization in...
All aspects of dealing with my daughter's condition.
Ways to make it better...
If I had to make changes to this organization, I would...
do nothing. I honestly don't know what I would do differently. Just keep doing what you're doing!