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Diabetes Hands Foundation
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January 10, 2012
1 person found this review helpful
Ten days before my 55th birthday I heard the doctor say "You have diabetes". The rest of that conversation is a blur. I hadn't been feeling well, but I never really get sick. Not even a cold. I ate well and was not over weight. How could this be? I knew next to nothing about diabetes. I needed desperately to learn what I needed to do. How do I eat? What did I have to do to bring my blood sugar down from the dangerous 436 that it was? I was overwhelmed. A trip to the CDE only frustrated me. All of this unknown was daunting. Where and how could I ever get the knowledge I needed to save my life? I knew I could not spend the kind of time it would require simply making Dr. appointments.TuDiabetes was the answer. Somehow in that early fog of uncertainty my wonderful wife came across a link. A community, a home with answers. Answers to questions I didn't even know to ask. I have spent countless hours over the last year reading and learning from the experience of other people with diabetes. The fog and the fear quickly melted away. I have a much better idea now of what to expect. And, I know I have a solid resource to lean on when I need to. A wonderful support team that spans the globe. I cringe to think where I might be today without TuDiabetes. That is no exaggeration. This is truly how I feel about DHF and TuD. They have become a critical member of my healthcare team. Knowledge is power and support is key.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
June 25, 2011
DHF is on of the premier sites for diabetes education int he world. The interactions and the wonderful access to practical information is absolutely the best.
The Great!
I've personally experienced the results of this organization in...
Yes. I have asked several questions over the years and have been richly rewarded with first class up to the minute answers form other participants
Ways to make it better...
If I had to make changes to this organization, I would...
add more opportunities.
June 24, 2010
I am diabetic. I have been a type 1 diabetic for the past 35 years and for the most part my wife and I have been alone. We make mistakes, learn new ideas about treatment and face the difficulties of living with a long-term chronic disease. The road has not been easy, and since I was alone, I faced all those situations by myself, and with my doctors, who I see every four months. My wife and I were alone until I found the DHF. As a client I am surrounded by people who are experiencing the same difficulties, as I. For the first time in years I have other diabetics who know what I am experiencing to ask questions, form friendships, and to whom I ask for help. It is one the great parts of my day when I log into the community and I see who has asked a question or who has answered mine. We hold hands across a great digital divide, and we care for each other and most important we get to laugh together. Laughing is the best thing we do. It is amazing to think that people, who have this disease, can laugh about it. Thank God for DHF, because when we communicate we learn, and when we learn we live, and when we live, we can laugh and when we laugh, the disease no longer controls us. Rick Phillips
The Great!
I've personally experienced the results of this organization in...
I have. The DHF has improved my life.
Ways to make it better...
If I had to make changes to this organization, I would...
Tell every diabetic in the world about it. This is the most caring online community I have ever experienced.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The spirit of the community.
The kinds of staff and volunteers that I met were...
very supportive
If this organization had 10 million bucks, it could...
Tell every diabetic about it. Community can help people who have this disease so much, and the DHF is the correct community.
Ways to make it better...
More people were members
In my opinion, the biggest challenges facing this organization are...
Funds. our little group needs more support for tis mission.
One thing I'd also say is that...
The directors of DHF work so hard, it is blessing to know how much they work for the community.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
February 11, 2011
I just came across this website and I have to say I am so happy to see that there are sites like this out there. My sister died at a young age due to complications of diabetes. There weren’t sites like this when she was alive. I believe it would’ve made such a difference in the quality of her life to be able to be part of a community that allowed her to comfortably be a diabetic. Now that I’ve found it I must volunteer!
The Great!
I've personally experienced the results of this organization in...
Just knowing that there is support for those with diabetes.
Ways to make it better...
If I had to make changes to this organization, I would...
Nothing yet but volunteer
February 4, 2011
The Diabetes Hands Foundation operates an online community known as TuDiabetes which is an ever-growing community of people who are going through the same things in their day-to-day lives.
A place where someone who is Diabetic can be just that, a Diabetic, or a place where someone newly diagnosed can come to get advice on how to cope and handle with what life has thrown at them. TuDiabetes is a place to remind you that you are not alone.
I just joined a couple of weeks back, and already I'm diving into the community. I've even found myself in situations where I can't wait to see a reply, or what someone has posted next.
It's a great community for all of us that are in the same boat, and its refreshing to know that we're not in it alone. We have eachother.
The Great!
I've personally experienced the results of this organization in...
This organization offers a place where a Diabetic can be just that, a Diabetic. What more can anyone ask for when they just want to be themselves?
Ways to make it better...
If I had to make changes to this organization, I would...
Personally I'd like to see/hear more about potential gatherings that the entire community can participate in, whether it be online or in person.
More feedback...
How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
How did you find this group?
The people are friendly and candid. The two makings of a great community about such a serious topic.
What, if any, change in your life has this group encouraged?
It's gotten me to be more open about what I go through everyday since my initial diagnosis just over 2 years ago.
When was your last experience with this nonprofit?
2011
January 1, 2011
When my son was first diagnosed with Type 1 diabetes at 18 months of age, I quickly found that the literature offered by my diabetes clinic addressed the larger issues of what was happening, but didn't help with day-to-day issues, particularly in a child so young. TuDiabetes gave me a place to learn the ins and outs of parenting a child -- an infant, really -- with diabetes. The community of members has really been an active partner in my son's care, and for that I'm eternally grateful.
The Great!
I've personally experienced the results of this organization in...
members of the community gave me tips for managing issues with my son's pump that helped me to understand how to operate it correctly.
Ways to make it better...
If I had to make changes to this organization, I would...
No changes
1 person found this review helpful
December 27, 2010
1 person found this review helpful
TuDiabetes is a wonderful place to go when you just want to talk about diabetes. Whether you need information, or suggestions for a specific problem, or just someone to listen and understand what you're going through, this is the place.
I found TuDiabetes after suffering a diabetic coma, when I was really needing to talk in order to mentally process my experience. People there really understood what I was talking about, and responded thoughtfully.
I have also enjoyed the opportunity to test my own knowledge of diabetes -- people will correct you if you're wrong!
All in all, I think TuDiabetes is the best diabetes web page out there, because of its scope, large membership, and well-thought-out organization.
The Great!
I've personally experienced the results of this organization in...
Making new e-friends and learning new facts.
Ways to make it better...
If I had to make changes to this organization, I would...
Make it more available to the newly diagnosed through more information to doctors and CDEs.
December 21, 2010
I have had a chance to see up close what Manny and the diabetes hands foundation does with diabetes awareness and diabetes social media advocacy and they are a top notch organization doing great works.
The Great!
I've personally experienced the results of this organization in...
some of their works for diabetes awareness month, for example the big blue test.
Ways to make it better...
If I had to make changes to this organization, I would...
Create bigger campaigns at the national level to increase awareness in the overall diabetic community.
September 24, 2010
The Diabetes Hands Foundation has done a fantastic job using the power of the online communities to help diabetics in need. From a donor perspective, the DHF provides a cost-effective way to reach tens of thousands of diabetics at a time. From a recipient's perspective, the online community of TuDiabetes provides an invaluable service of connecting diabetics, allowing for advice, support, and idea exchange which I believe can tangibly reduce the risk of complications for diabetics.
The Great!
I've personally experienced the results of this organization in...
As a new diabetic, there's a lot to learn. The TuDiabetes community is like a 24x7 life line. The collective knowledge of this group is simply amazing.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
Meeting people who know exactly what I'm going through, getting advice from people who have overcome similar challenges, and getting inspiration from diabetics who live long, healthy, and active lives.
If this organization had 10 million bucks, it could...
Open up more local and international sites to serve specific regions. There are 90 million diabetics in China alone, and currently the site is only available in English and Spanish.
When was your last experience with this nonprofit?
2010
September 19, 2010
The TuDiabetes Website sponsored by The Diabetes Hands Foundation is an important gathering place for diabetes sufferers to meet and greet each other while exchanging solutions to common issues with testing equipment, foods and life experiences all with good humor. This website is a source of comfort and insight that is very unique. Thank you Manny Hernandez for creating this venue.
The Great!
I've personally experienced the results of this organization in...
TuDiabetes.org website.
More feedback...
When was your last experience with this nonprofit?
2010
1 person found this review helpful
September 15, 2010
1 person found this review helpful
The Diabetes Hand Foundation sponsors TuDiabetes, a message board for diabetics. I have been diabetic for almost 27 years now and suffer from some complications. I have learned a lot being able to talk to other diabetics online and also enjoy being able to help others by sharing the things that I know. I have gastroparesis and doctors were not able to help me figure out how to get good blood sugar control - I learned that by talking to others with the same problem. TuDiabetes has been a life changer for me and really appreciate the fact that Manny and others work hard to provide the message board for us.
The Great!
I've personally experienced the results of this organization in...
When I decided to get a Dexcom CGMS and an insulin pump, fellow TuDiabetes board members helped make that transition very smooth.
Ways to make it better...
If I had to make changes to this organization, I would...
I wish that people. including myself, could give more money so the Diabetes Hand Foundation could expand on the things that it does.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The ability to interact with other diabetics and share what I know and learn new stuff.
The kinds of staff and volunteers that I met were...
Extremely helpful and kind.
If this organization had 10 million bucks, it could...
Reach out to all diabetics to make sure they are well educated in their disease.
Ways to make it better...
I can't say there is anything I would change since my experience has been very positive.
In my opinion, the biggest challenges facing this organization are...
Probably fund raising to make sure they can get enough money to keep things going.
One thing I'd also say is that...
Thank you Manny and everyone else at TuDiabetes for everything that you do.
When was your last experience with this nonprofit?
2010
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Thank you for your kind words, Randy! We are honored to be able to serve you the way you describe...