Breath of Hope Inc.
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May 7, 2012
I am a CDH parent who dared to question Elizabeth years ago and was kicked out of Breath of Hope. She is the most dishonest, immature, unprofessional narcissist I have ever had the misfortune to encounter. She was fired from the Red Cross for mismanagement of funds and now she is doing the same with Breath of Hope. She was kicked out of CHERUBS and Compassionate Friends. She was fired from a cemetery job because she couldn't even get along with dead people. She has bounced from one non-profit to another until she had to start her own because no one else wanted to deal with her bipolar psychosis. She offers nothing and rides on others coattails to build her own self-esteem while leaving a wake of destruction in her path. She should never be allowed to work in the non-profit sector.
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How would you describe the help you got from this organization?
None
How likely are you to recommend this organization to a friend?
No
How do you feel you were treated by this organization?
Badly
When was your last experience with this nonprofit?
2006
May 3, 2012
BOH was the ONLY active CDH organization when my daughter was diagnosed with CDH in 2006. The support I received was amazing! The network of other CDH parents that BOH provided became my lifeline as my daughter fought for her life. I had other CDH parents visit me while we spent several months in the hospital. Some of these wonderful people came even though their CDH Angel was no longer with them. These visits meant the world to me! I owe my sanity to BOH!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
May 3, 2012
I never heard of CDH before my daughter was diagnosed at 19 weeks gestation. That night I searched for information and answers on the internet, when I found BOH. This organization gave me information on what to expect and what to ask the doctors, but more important, they gave me hope! There were many long scary nights in the NICU after my daughter was born, but the support of this amazing group got me and my husband through it with most of our sanity intact. I recommend this organization to anyone having a baby with CDH for information and support. The other members have very special places in my heart. It has been 3 1/2 years since my daughter's birth and we have been very fortunate that she does not have many issues now, but each one of these members are so, so supportive of her and our family!!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
May 14, 2010
1 person found this review helpful
when my husband and I found out that we were carring a baby girl with CDH we were devastated. I found BOH on line and could not believe the love and support that they gave us. As the time to having Sydney grew closer the love grew stonger. They gave was so much information about what to expect and what to ask the doctors. it was a very difficult time in our lives but we would not be able to get through it withoput Breath of Hope. They gave us hope when we thought we had none.
The Great!
I've personally experienced the results of this organization in...
dealing with my daughter's birth defect. They have given us information, awareness ribbons and bracelets, and care packages.
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What I've enjoyed the most about my experience with this nonprofit is...
the support and careing people who are a part of it. The information is priceless and their drive to find answers is never ending
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
1 person found this review helpful
May 3, 2012
1 person found this review helpful
After having experienced other CDH groups I find BOH refreshing! :) Elizabeth always has positive things to say to other CDH families and never bad mouths anymore. She encourages members to help other people and spread awareness. BOH is not about 1 person, it's about the whole group.
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Will you volunteer or donate to this organization?
Likely
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2012
May 3, 2012
Breath of Hope's CEO, Elizabeth Doyle-Propst, anonymously posted this as a review on a competing charity. Slandering other charities is horrible. Personally attacking another charity president is immature and unprofessional. This is why the CDH community is divided. Leave other charities alone and start focusing on your own.
"This organization was formed for one person's ego, Dawn Torrence Williamson, who still calls herself a grieving Mother. She attempted to file suit against Duke Medical Center and their doctors for her son's condition. The name of the organization is based upon her own son and the decorations she chose for his nursery - that is public record with "her story" she has posted out on anything and everything she can.
She has banned members because they asked too many questions - or they left and then she "banned" them. Then she tells all she can use their photos because they signed a contract and threatens to sue them. When if she banned them, she negates the contract - therefore she can't use said photos.
Until she is ousted from the CDH community and this organization the "drama" will continue because she is the source of it. She has filed suit against other organizations and defamed them all over the internet, even encouraging others to attack the volunteers of other organizations.
This organization was ignored from 2000 - 2007, only to come back because another organization was forming. It was never about these families or these children. It was about one person and her ego. She continues to bash others and lie. The materials and website have misinformation all over them and too many state there is nothing but doom and gloom when visiting it.
Research is not taking surveys, especially ones that ask if you ever were struck by lightening. There is no official Board of Directors, the doctors she lists want nothing to do with her organization and do not have on their CVs that they are Board Members.
Where did the $30K go to? Office space? Parades? How is that cost effective? Truly this woman needs to be outed for what she is and uneducated, ignorant, lying drama queen who does nothing but play on the Internet all day.
The Great!"
More feedback...
Will you volunteer or donate to this organization?
No
How much of an impact do you think this organization has?
None
When was your last experience with this nonprofit?
2012
July 7, 2011
Breath of Hope has continued to support CDH awareness even into my son's 2nd year of life. My son Carter was diagnosed at 23 weeks gestation, we spent 7 months in the NICU at Cincinnati Children's Hospital. To celebrate Carter's second birthday and the miracle of his life, we did a small fundraiser during CDH Awareness Month - March 2011. Elizabeth sent (without being asked to do so) almost 50 different items for me to give to people who participated in the fundraiser. She offered pins and wrist bands free of charge and no postage cost to us. This was a huge help for our event and enabled us to further spread the word about this awful congenital defect.
We are greatful for organizations like Breath of Hope. This organization also has allowed us to connect with many other CDH families that we keep contact with today.
We cannot thank you all enough.
The Great!
I've personally experienced the results of this organization in...
I've personally experienced the results of this organization in seeing the sincere care that is placed on events and fundraisers that are intended to bring awareness to this birth defect.
Ways to make it better...
If I had to make changes to this organization, I would...
eliminate the need for competition between groups who support the same cause.
July 6, 2011
I have been a member of B.O.H .for 2 years now and I have contributed to this organization. While they did not help me personally in any form except a list serve, I nevertheless thought this a good charity and I trusted that Elizabeth Doyle Propst was a good leader.
Last week a law journal article about trademarks on CDH Awareness was bought to my attention and I felt compelled to read it. I was aware of the trademarks that Elizabeth filed and believed she was doing so to protect the intellectual property of the charity. I had more than one conversation with the staff at B.O.H. about this and was told that B.O.H. was being sued by C.H.E.R.U.B.S. and that members should not concern ourselves with such pettiness. I believed every word as truth and continued to support B.O.H. through contributions and social media.
After reading this article however, I am flabbergasted. I researched the related trademark papers on the government site and found that the journal article is not only true, but that I was blatantly lied to by Elizabeth and others at B.O.H. about the trademarks. I did more research and looked at both trademarks and what C.H.E.R.U.B.S. said about the situation. I found C.H.E.R.U.B.S. to be honest and forthright enough to provide families URLs to support the facts. In the past 2 years I have watched B.O.H. shushing any attempts by it's members to seek out facts or legal paperwork while condemning another CDH charity. The final straw was seeing a video on Facebook of a court case in which the president of C.H.E.R.U.B.S. had to get a restraining order against Elizabeth. After hearing Elizabeth's own voice lie under oath about harassing her I felt physically ill. I had heard rumors but Elizabeth has always been nice to me so I ignored them. I try hard to believe the good in people but often that makes me a fool, as in this situation.
Angered, I came here to search more information about both charities and found that B.O.H. spent $12,000 in 2009 in legal fees to keep the trademark while C.H.E.R.U.B.S. did not spend any funds. Were my donations used to pay this? What was spent in legal fees for 2010 and 2011?
I believed that B.O.H. was created to help CDH families and I wanted to be a part of that. Now I feel that it was just a tool for a vengeful woman to attack others. I cannot fathom the dishonesty and hatred I am witnessing in these papers and videos and it disgusts me. I am very angered and disappointed by this. It is reprehensible that a charity should hold trademarks over another charity this way and then lie to it's members and the public. I will not donate to nor support B.O.H. in the future. I will be filing complaints against B.O.H. and I should hope that the IRS does something to correct this behavior.
The Great!
I've personally experienced the results of this organization in...
I was a member for 2 years. I have a child born with Congenital Diaphragmatic Hernia. I hold honesty and integrity in very high regard and found that it to be severely lacking at B.O.H..
Ways to make it better...
If I had to make changes to this organization, I would...
A complete review of all finances and behaviors of this organization and it's leader. Refund all money to donors. A public apology to members, C.H.E.R.U.B.S. and the public. Complete disclosure of all legal paperwork of all cases.
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How would you describe the help you got from this organization?
A little
How likely are you to recommend this organization to a friend?
No
How do you feel you were treated by this organization?
Badly
How did you find this group?
Doctor referral.
What, if any, change in your life has this group encouraged?
I will not support another charity without researching first.
March 31, 2011
Awesome group of people who offer support, advice and prayers. A group that you can share your child's story and experiences or updates of your child because they have experienced it or they have a family member who is a CDH hero.
The Great!
I've personally experienced the results of this organization in...
dealing with CDH
Ways to make it better...
If I had to make changes to this organization, I would...
no changes need to be made
March 27, 2011
My son was born with CDH in May of 2009. Before he was diagnosed in the womb, we had never heard of CDH. The internet is full of very negative and heartbreaking information that did not allow us much hope while preparing for our sons arrival and the journey through a very scary time in our lives. The NICU nurses at the hospital pointed us in the direction of Breath of Hope and I have been following and looking to them for guidance ever since. Not only has BoH serves as a great source of information about Cash's early battle with CDH, but also continues to help me feel comfortable and make decisions about things such as shots, doctors appointments and just general support of other parents who have gone through similar circumstances. I will always be grateful to them for being our Breath of Hope!
The Great!
I've personally experienced the results of this organization in...
making decisions for my sons care.
Ways to make it better...
If I had to make changes to this organization, I would...
strive for more advertisment. This nonprof group could help so many more people out there who have no idea BoH exists.
March 22, 2011
This organization helps families that have been touched in some way by the birth defect Congenital Diaphragmatic Hernia through support, awareness and ideals. They are like family but never pushy or unattainable. Their website, facebook page and Yahoo.group page are sources of continued support where someone will be there for you, a lot of the times it doesn't matter the time of day, a member is there to listen. They have a huge list of helpful material they give away and are a haven in a storm of confusion and fear just when you need them.
The Great!
I've personally experienced the results of this organization in...
In January 2007, during a routine 20 week ultrasound, it was discovered that my ninth child had CDH(Congenital Diaphragmatic Hernia) when I got home after the appointment and started research on this defect, the majority of what I found was a: out of date and b: depressing and felt unwelcoming until I found a lady facing a similar situation as me and mention she found this website called Breath of Hope. I checked them out and felt an instant attraction. And since then I have been a member
Ways to make it better...
If I had to make changes to this organization, I would...
As far as changes, the only real change would be not to have a need for an organization as this but there is a need so I would say then more personal face-to-face meetings with others facing the same challenges would be nice.
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